Chronic Pain Rant

People only seem to believe how much pain you’re in when you’re in agony and you’re miserable and you’re crying they can’t seem to Fathom that if you’re smiling in conversation or enjoying anything you’re doing that you could be possibly having as much pain as you claim to be having but why on Earth would you want to live everyday of your life in agony?!

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My Eventful Weekend πŸ’œ Grandprix Boat Races in Gulfport, Fl

***GOOD NEWS ALERT***

Though I am paying for it today, this weekend was probably the best weekend I have had in over a year!

Not to mention, it has rained every weekend for weeks here in Pinellas County, Florida, but πŸ˜‡ God must have been shining down on us this weekend 🌞 the Grand Prix boat races came into Gulfport, Florida for the 2nd year. And it was a free event! Probably the best part about it was it was on the beach πŸ– Y’all it really doesn’t get much better than digging your toes in the sand and watching some cool ass boats racing by!

We were blessed with a beautiful Breeze and though the first day we didn’t plan as well as we should have

I love these guys!
Side note: Rarely do I admit my mother-in-law is right, but my word is she right about my husband being his father’s clone
A cute collage of Saturdays fun. We were without shelter, and found ourselves “shade hopping” for hours 😴

the 2nd day we were ready!

Look at that gorgeous Florida sky!

Cooler full of water βœ… bag full of snacks βœ… chairs for our butts βœ… umbrella βœ…

#chiari#chiaristrong#chronicliving
I am so blessed y’all!πŸ’œπŸ˜‡
Setting up shop to watch “the big race”

I hope you enjoyed a little snippet of my great spoonie weekend!

And if you’d like to see more videos and pictures of the Grand Prix boat races, or if my #chiarilife please head on over to my IG and give me a follow 😘 I look forward to seeing you there! Now, back to the couch😴😴😴

P.S. I follow back! I love supporting “the little guy” small businesses owners, authors, bloggers, in general, others like me, those just trying to make their way in this crazy, beautiful world, chronic illness or not 😘

Much love!

Thanks for taking the time out of your day to stop by and give my blog a read!

Keep on smiling thru the pain!

Learning to Manage Hard Feelings Pt. 1

Living with chronic illness can be tough. There is an array of feelings you go through everyday; not just physical feelings, but emotional feelings as well.

The physical is hard enough to deal with on a daily basis, but then to throw on top of that the emotional termoil that comes with chronic illness.

Chances are most days you feel like shit.

Inside and out.

You feel terrible, and you’re so tired of it.

You begin to question how worth it any of this is.

When this happens, it’s time to flip the switch on your thinking.

Instead of “why is this happening to me?” Ask “what can I learn from this?”

Change the questions you are askng yourself.

Our feelings are valid and important, but they are not in charge.

Learning this and applying it to your daily life can be hard, but it is completely doable.

Challenge yourself by being mindful.

Respond vs. React

Feelings are perfectly fine to have.

All of them.

Just don’t let them have you.

More to come on this topic in Pt.2

Keep smiling through πŸ’œ

You are a badass and you’ve got this😘

The Picker Upper / The Untold Responsibilities of Adulthood

Glancing at some Q-tips on the floor, under my son’s bedside table, I begin to wonder πŸ€”

“How do they even get there?!?!” I ask myself..

How do they even get there?!

πŸ€” at what point in our lives does it become painfully apparent that we are now the party “responsible” for picking up that thing on the floor (or under the table, etc?) When does it hit us that we are now the picker upper??

It is almost as if he threw them down there as a challenge to my aching back! The nerve!

🀷 when did you reach this milestone in your life? Or are you still one of the lucky non picker upper people???

πŸ˜‚ keep smiling through the pain πŸ’œ

Do You Know You Are Not Alone?

Do you know how important you are?

Did you wake up this morning in pain?

Maybe like me, you wake up in pain everyday.

Do you know you are not alone? Do you know you don’t have to face this pain alone?

Even when your friends and family flake under the pressure of your chronic illness, did you know God is always with you?

The very thing we have been searching for in others, we can find in Him;

He never changes so our identity is rock solid; as long as we wake up everyday with an unwavering determination to stay connected to Him we’ve nothing to fear.

We don’t have to face the trials of this life alone! Our Mighty God is always with us; the nearer we draw ourselves to Him the safer we feel in the storms of this life.

He is my strength; He is my rock and my deliver; He carries me when I cannot carry myself; He loves me unconditionally, and He feels the same way about you.

Be strong today SpooniesπŸ’œπŸ’ͺ

Give your battles to the one that made you.

Keep on smiling through the pain πŸ’œ

A promise to Myself

I made a promise to myself more than 5yrs ago that no matter what happens in life I would fight through it, look for the lessons in the mess, and learn them! I never dreamed part of my journey would include being diagnosed with Chiari, or that I would have to have brain surgery! If only my head had grown bigger πŸ€” or my brain smaller…but who am I kidding?πŸ˜… I’d rather have a bigger head than a smaller brain!! Anywho, my point is, no matter what life throws your way, you must be predetermined to fight the good fight! If I’ve got this, you’ve got this πŸ’ͺ keep showing up for life EVERYDAY!πŸ’œ

8 months after chiari decompression surgery

So here I am 8 months after surgery and 2 + weeks after having stopped taking Lyrica, it’s hard to explain how I somehow feel better and worse all at the same time 🀷 I highly doubt I will ever take Lyrica again. I know it may work for some but I found it was not working for me. Sadly most of the symptoms I had a year ago have returned; added to them is the feeling of an ogre squeezing the bottom left side of my head all day long..

I just try to remind myself that my CSF flow being severely blocked was reason enough for the surgery and I guess if I really had to weigh it out honestly I do feel better than I felt in August of 2017.

Hmm πŸ€” maybe had I been able to lock myself up in a safe little box away from the world while I was recovering things wouldn’t have felt so rough 🀷 but life keeps happening no matter what else is happening.

I’m learning to adapt, as I always have, that’s what a chronic pain Warrior does. I’m determined I’m still going to live my life!πŸ’ͺ Chiari has had me for too long, it’s time that I have Chiari.

Keep smiling through the pain!πŸ’œ