Though I am paying for it today, this weekend was probably the best weekend I have had in over a year!
Not to mention, it has rained every weekend for weeks here in Pinellas County, Florida, but 😇 God must have been shining down on us this weekend 🌞 the Grand Prix boat races came into Gulfport, Florida for the 2nd year. And it was a free event! Probably the best part about it was it was on the beach 🏖 Y’all it really doesn’t get much better than digging your toes in the sand and watching some cool ass boats racing by!
We were blessed with a beautiful Breeze and though the first day we didn’t plan as well as we should have
the 2nd day we were ready!
Cooler full of water ✅ bag full of snacks ✅ chairs for our butts ✅ umbrella ✅
I hope you enjoyed a little snippet of my great spoonie weekend!
And if you’d like to see more videos and pictures of the Grand Prix boat races, or if my #chiarilife please head on over to my IG and give me a follow 😘 I look forward to seeing you there! Now, back to the couch😴😴😴
P.S. I follow back! I love supporting “the little guy” small businesses owners, authors, bloggers, in general, others like me, those just trying to make their way in this crazy, beautiful world, chronic illness or not 😘
Thanks for taking the time out of your day to stop by and give my blog a read!
Glancing at some Q-tips on the floor, under my son’s bedside table, I begin to wonder 🤔
How do they even get there?!
🤔 at what point in our lives does it become painfully apparent that we are now the party “responsible” for picking up that thing on the floor (or under the table, etc?) When does it hit us that we are now the picker upper??
🤷 when did you reach this milestone in your life? Or are you still one of the lucky non picker upper people???
As parents our instinctual mission in life is to protect our children from pain, all types of pain, because, let’s face it, as adults we know life can be extremely painful; both emotionally and physically. There will inevitably be times in life when we cannot protect them, and we are forced to sit by helplessly and comfort them the best we can. As scary as it may be, I believe when these times arise we find out the superheroes we really are! I was gifted with so much mentally clarity and energy; things I lack on a daily 🙄😒 but, not yesterday. That parental instinct kicks in, and suddenly we are our children’s superhero’s! I think that makes us all at least a little badass 💪😅
Sitting in the car line at my son’s school, waiting to pick him up, I received a call from his principal. Now, I’m nervously waiting for her to tell me some sort of bad news, and thinking well at least I’m already here 🤦 the common pleasantries are exchanged and she assures me this is a goodnews phone call. What I am told next blows my mind and brings tears of joy to my eyes! Our son, our very own smarty pants, has scored the highest mathematics score of his entire 5th grade class and earned himself a PRIDE AWARD! And so awesome is this award that he gets to get dressed up, hear his name called out on stage, shake the superintendent’s hand and have his picture taken with him, then receive a trophy with his very own name on it!!
I’m not sure how we could be more proud of Ric than we are right now but, I’m positive he’ll give us many more opportunities to find out!
Clearly as his parents we hope this is a magnificent sign of things to come in the future! Our son doesn’t like when I talk about it but when he was a toddler there was a time when his doctor and ourselves were concerned that he could possibly be autistic. For about a six-month period we had a behavioral therapist come out once a week to work with him, she always said she looked forward to it because he was one of the smartest kids she had ever encountered. As time went on she began to believe his intelligence was the reason we were facing some of the problems we were facing with him. Lol. Kids. He’s never been ‘like the other kids’ and that is one of our biggest blessings!
He was gifted with an incredible mind! He’s never been treated like he was different than anyone else and looking at him today you would never know the troubles we faced during his toddler years. God knows what he’s doing, just have faith.
I’m very thankful I was blessed with a good spoonie day for the award ceremony at Ruth Eckerd Hall either that or I was just so excited about my baby boy earning a pride award for mathematics 🤷 either way it was an amazing feeling. My husband and I beaming with pride! I feel extremely fortunate that the Lord chose me to be his mother.
It has been 6 months since my surgery. Sadly, I report… I do not feel better. To be honest, I feel worse. I feel worse than I did a year ago, before I even knew what Chiari malformation was… the nerve pain in my limbs is returning full force as is the burning under my shoulder blades and on top of that here is the new nerve pain throughout my head. I’ve got some form of a headache/migraine everyday. PT seems to only be making things worse. We are trying to remain positive but, I fear a trip back to the neuro is imminent.. I do not plan to have a decompression surgery again unless it is absolutely medically necessary. It is hard to admit, but I am more than a little angry about this whole situation. I know, God’s will and plans, not mine, but sometimes I can’t help but wonder why…why does my son have to watch this happen to his mom? I’m supposed to be strong, my family shouldn’t have to watch me struggle!!! Why can’t I just beat this? And Bless it all, why doesn’t positive thinking just fix this?!*sarcasm*
We always take a picture in front of our Christmas tree. I’m sure most families do. Setting the timer on the phone, and quickly getting to your places.
This year our furry family members kindly reminded us that we were forgetting to include them! How dare us, really! Enter stage right, our silly dog Spencer, and of course Mr. Kitty was right behind him!
Try as you may, try as you might, you will find in life that there are some people you just can’t make happy. No matter what you do, or don’t do, say or don’t say, you can’t make them happy. And, the reason you cannot make them happy is because it is not your job. They choose not to be happy. All too often these very people are your own family. Whether they be in-laws, or blood, you will find some people are just best to stay away from. They are poisonous. They are so unhappy with their own lives that they choose to drag down anyone around them.