My Eventful Weekend πŸ’œ Grandprix Boat Races in Gulfport, Fl

***GOOD NEWS ALERT***

Though I am paying for it today, this weekend was probably the best weekend I have had in over a year!

Not to mention, it has rained every weekend for weeks here in Pinellas County, Florida, but πŸ˜‡ God must have been shining down on us this weekend 🌞 the Grand Prix boat races came into Gulfport, Florida for the 2nd year. And it was a free event! Probably the best part about it was it was on the beach πŸ– Y’all it really doesn’t get much better than digging your toes in the sand and watching some cool ass boats racing by!

We were blessed with a beautiful Breeze and though the first day we didn’t plan as well as we should have

I love these guys!
Side note: Rarely do I admit my mother-in-law is right, but my word is she right about my husband being his father’s clone
A cute collage of Saturdays fun. We were without shelter, and found ourselves “shade hopping” for hours 😴

the 2nd day we were ready!

Look at that gorgeous Florida sky!

Cooler full of water βœ… bag full of snacks βœ… chairs for our butts βœ… umbrella βœ…

#chiari#chiaristrong#chronicliving
I am so blessed y’all!πŸ’œπŸ˜‡
Setting up shop to watch “the big race”

I hope you enjoyed a little snippet of my great spoonie weekend!

And if you’d like to see more videos and pictures of the Grand Prix boat races, or if my #chiarilife please head on over to my IG and give me a follow 😘 I look forward to seeing you there! Now, back to the couch😴😴😴

P.S. I follow back! I love supporting “the little guy” small businesses owners, authors, bloggers, in general, others like me, those just trying to make their way in this crazy, beautiful world, chronic illness or not 😘

Much love!

Thanks for taking the time out of your day to stop by and give my blog a read!

Keep on smiling thru the pain!

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Picture Poetry / Sleepy Kitty

Visit your local shelter

http://www.friendsofstrays.com/

A loyal loving animal is waiting to rescue you today! πŸ˜‰πŸ’œ

The Picker Upper / The Untold Responsibilities of Adulthood

Glancing at some Q-tips on the floor, under my son’s bedside table, I begin to wonder πŸ€”

“How do they even get there?!?!” I ask myself..

How do they even get there?!

πŸ€” at what point in our lives does it become painfully apparent that we are now the party “responsible” for picking up that thing on the floor (or under the table, etc?) When does it hit us that we are now the picker upper??

It is almost as if he threw them down there as a challenge to my aching back! The nerve!

🀷 when did you reach this milestone in your life? Or are you still one of the lucky non picker upper people???

πŸ˜‚ keep smiling through the pain πŸ’œ

Our Son’s Trip to πŸ₯ All Children’s ER/ How Fun Turned into a Fractured Thumb πŸˆ

As parents our instinctual mission in life is to protect our children from pain, all types of pain, because, let’s face it, as adults we know life can be extremely painful; both emotionally and physically. There will inevitably be times in life when we cannot protect them, and we are forced to sit by helplessly and comfort them the best we can. As scary as it may be, I believe when these times arise we find out the superheroes we really are! I was gifted with so much mentally clarity and energy; things I lack on a daily πŸ™„πŸ˜’ but, not yesterday. That parental instinct kicks in, and suddenly we are our children’s superhero’s! I think that makes us all at least a little badass πŸ’ͺπŸ˜…

Our son tends to be very independent, but I was especially proud of how brave he was during this whole experience. I asked him later in the day if he had cried at all because I had not seen him shed hardly a tear and his reply was no he didn’t cry…
Not that crying is a sign of weakness, it was just hard to believe with the pain level of a 6.5 that he was describing to me that he wasn’t in tears, he’s only 11 for God sakes, with the first broken bone he has ever had… I think I watched him grow up a bit more, right before my eyes yesterday. The only reason I was able to take so many pictures is because he chose to walk without holding my hand
He was obviously nervous. My poor baby, but he held it together like a real trooper! When it started to feel like it was taking forever in the waiting room he finally laid his head in my lap.
I think today he was reminded how much he still needs Mom
They had an awesome movie streaming service! We watched Lego Batman ☺
Thankfully his Dad has injured himself in the past, πŸ˜… that sounded terrible, but he was able to give him a heads up on what he should expect πŸ˜‡
The staff at All Children’s was fantastic! The nurse, whose name I can not remember πŸ˜•, became quick buds with Ric as they talked about console vs. PC gaming, hackers, and their favorite games.

The look of unknowing fear on his face hurts my heart

He was not a very happy camper once he realized he was getting a cast..
But on the plus side I actually got him to sit comfortably on my lap, he was comfortable, not me, he weighs 80 something pounds!πŸ˜…
Strange request for dinner, but it it made him happy so πŸ‘πŸ‘
We pray he heals quickly. We will find out the actual extent of the injury tomorrow afternoon.

Proud Parents/Pride Award Winner

Sitting in the car line at my son’s school, waiting to pick him up, I received a call from his principal. Now, I’m nervously waiting for her to tell me some sort of bad news, and thinking well at least I’m already here 🀦 the common pleasantries are exchanged and she assures me this is a good news phone call. What I am told next blows my mind and brings tears of joy to my eyes! Our son, our very own smarty pants, has scored the highest mathematics score of his entire 5th grade class and earned himself a PRIDE AWARD! And so awesome is this award that he gets to get dressed up, hear his name called out on stage, shake the superintendent’s hand and have his picture taken with him, then receive a trophy with his very own name on it!!

Mathematics PRIDE Award Winner

I’m not sure how we could be more proud of Ric than we are right now but, I’m positive he’ll give us many more opportunities to find out!

Customary family picture. We all shine up nicely if I do say so myself✨

Clearly as his parents we hope this is a magnificent sign of things to come in the future! Our son doesn’t like when I talk about it but when he was a toddler there was a time when his doctor and ourselves were concerned that he could possibly be autistic. For about a six-month period we had a behavioral therapist come out once a week to work with him, she always said she looked forward to it because he was one of the smartest kids she had ever encountered. As time went on she began to believe his intelligence was the reason we were facing some of the problems we were facing with him. Lol. Kids. He’s never been ‘like the other kids’ and that is one of our biggest blessings!

He was gifted with an incredible mind! He’s never been treated like he was different than anyone else and looking at him today you would never know the troubles we faced during his toddler years. God knows what he’s doing, just have faith.

On the look out for our Principal. The nervous excitement is setting in.
She’s been spotted!
Let’s do this!
Proud Mom and Dad
Father and son

I’m very thankful I was blessed with a good spoonie day for the award ceremony at Ruth Eckerd Hall either that or I was just so excited about my baby boy earning a pride award for mathematics 🀷 either way it was an amazing feeling. My husband and I beaming with pride! I feel extremely fortunate that the Lord chose me to be his mother.

When Surgery does not Work- 6 months after decompression

​It has been 6 months since my surgery. Sadly, I report… I do not feel better. To be honest, I feel worse. I feel worse than I did a year ago, before I even knew what Chiari malformation was… the nerve pain in my limbs is returning full force as is the burning under my shoulder blades and on top of that here is the new nerve pain throughout my head. I’ve got some form of a headache/migraine everyday. PT seems to only be making things worse. We are trying to remain positive but, I fear a trip back to the neuro is imminent.. I do not plan to have a decompression surgery again unless it is absolutely medically necessary. It is hard to admit, but I am more than a little angry about this whole situation. I know, God’s will and plans, not mine, but sometimes I can’t help but wonder why…why does my son have to watch this happen to his mom? I’m supposed to be strong, my family shouldn’t have to watch me struggle!!! Why can’t I just beat this? And Bless it all, why doesn’t positive thinking just fix this?!*sarcasm*

Family Photo Bomb

We always take a picture in front of our Christmas tree. I’m sure most families do. Setting the timer on the phone, and quickly getting to your places.

This year our furry family members kindly reminded us that we were forgetting to include them! How dare us, really! Enter stage right, our silly dog Spencer, and of course Mr. Kitty was right behind him! 

Ha Ha Ha

Best Christmas picture ever!

Happy New year everyone!

Breaking Point

We stay quiet too long, say we’re fine too many times, and put yet another person in front of ourselves we mustn’t keep doing this! Living life this way is exhausting! Crushing, at times terrifying… who’s going to take care of me? I’ve spent my whole life taking care of everyone else.. now who’s going to take care of me? they don’t know how to they’ve never had to really do it before now.. who’s going to take care of me? I’m at my Breaking Point feeling, the darkness creeping in, who’s going to take care of me??

Toxic Family

Try as you may, try as you might, you will find in life that there are some people you just can’t make happy. No matter what you do, or don’t do, say or don’t say,  you can’t make them happy. And, the reason you cannot make them happy is because it is not your job. They choose not to be happy.          All too often these very people are your own family. Whether they be in-laws, or blood, you will find some people are just best to stay away from. They are poisonous. They are so unhappy with their own lives that they choose to drag down anyone around them. 

A drowning person will desperately, and blindly, grab on to anything to stay afloat. Throw them a lifesaver, and keep your distance.