My Eventful Weekend πŸ’œ Grandprix Boat Races in Gulfport, Fl

***GOOD NEWS ALERT***

Though I am paying for it today, this weekend was probably the best weekend I have had in over a year!

Not to mention, it has rained every weekend for weeks here in Pinellas County, Florida, but πŸ˜‡ God must have been shining down on us this weekend 🌞 the Grand Prix boat races came into Gulfport, Florida for the 2nd year. And it was a free event! Probably the best part about it was it was on the beach πŸ– Y’all it really doesn’t get much better than digging your toes in the sand and watching some cool ass boats racing by!

We were blessed with a beautiful Breeze and though the first day we didn’t plan as well as we should have

I love these guys!
Side note: Rarely do I admit my mother-in-law is right, but my word is she right about my husband being his father’s clone
A cute collage of Saturdays fun. We were without shelter, and found ourselves “shade hopping” for hours 😴

the 2nd day we were ready!

Look at that gorgeous Florida sky!

Cooler full of water βœ… bag full of snacks βœ… chairs for our butts βœ… umbrella βœ…

#chiari#chiaristrong#chronicliving
I am so blessed y’all!πŸ’œπŸ˜‡
Setting up shop to watch “the big race”

I hope you enjoyed a little snippet of my great spoonie weekend!

And if you’d like to see more videos and pictures of the Grand Prix boat races, or if my #chiarilife please head on over to my IG and give me a follow 😘 I look forward to seeing you there! Now, back to the couch😴😴😴

P.S. I follow back! I love supporting “the little guy” small businesses owners, authors, bloggers, in general, others like me, those just trying to make their way in this crazy, beautiful world, chronic illness or not 😘

Much love!

Thanks for taking the time out of your day to stop by and give my blog a read!

Keep on smiling thru the pain!

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Learning to Manage Hard Feelings Pt. 1

Living with chronic illness can be tough. There is an array of feelings you go through everyday; not just physical feelings, but emotional feelings as well.

The physical is hard enough to deal with on a daily basis, but then to throw on top of that the emotional termoil that comes with chronic illness.

Chances are most days you feel like shit.

Inside and out.

You feel terrible, and you’re so tired of it.

You begin to question how worth it any of this is.

When this happens, it’s time to flip the switch on your thinking.

Instead of “why is this happening to me?” Ask “what can I learn from this?”

Change the questions you are askng yourself.

Our feelings are valid and important, but they are not in charge.

Learning this and applying it to your daily life can be hard, but it is completely doable.

Challenge yourself by being mindful.

Respond vs. React

Feelings are perfectly fine to have.

All of them.

Just don’t let them have you.

More to come on this topic in Pt.2

Keep smiling through πŸ’œ

You are a badass and you’ve got this😘

The Picker Upper / The Untold Responsibilities of Adulthood

Glancing at some Q-tips on the floor, under my son’s bedside table, I begin to wonder πŸ€”

“How do they even get there?!?!” I ask myself..

How do they even get there?!

πŸ€” at what point in our lives does it become painfully apparent that we are now the party “responsible” for picking up that thing on the floor (or under the table, etc?) When does it hit us that we are now the picker upper??

It is almost as if he threw them down there as a challenge to my aching back! The nerve!

🀷 when did you reach this milestone in your life? Or are you still one of the lucky non picker upper people???

πŸ˜‚ keep smiling through the pain πŸ’œ

Our Son’s Trip to πŸ₯ All Children’s ER/ How Fun Turned into a Fractured Thumb πŸˆ

As parents our instinctual mission in life is to protect our children from pain, all types of pain, because, let’s face it, as adults we know life can be extremely painful; both emotionally and physically. There will inevitably be times in life when we cannot protect them, and we are forced to sit by helplessly and comfort them the best we can. As scary as it may be, I believe when these times arise we find out the superheroes we really are! I was gifted with so much mentally clarity and energy; things I lack on a daily πŸ™„πŸ˜’ but, not yesterday. That parental instinct kicks in, and suddenly we are our children’s superhero’s! I think that makes us all at least a little badass πŸ’ͺπŸ˜…

Our son tends to be very independent, but I was especially proud of how brave he was during this whole experience. I asked him later in the day if he had cried at all because I had not seen him shed hardly a tear and his reply was no he didn’t cry…
Not that crying is a sign of weakness, it was just hard to believe with the pain level of a 6.5 that he was describing to me that he wasn’t in tears, he’s only 11 for God sakes, with the first broken bone he has ever had… I think I watched him grow up a bit more, right before my eyes yesterday. The only reason I was able to take so many pictures is because he chose to walk without holding my hand
He was obviously nervous. My poor baby, but he held it together like a real trooper! When it started to feel like it was taking forever in the waiting room he finally laid his head in my lap.
I think today he was reminded how much he still needs Mom
They had an awesome movie streaming service! We watched Lego Batman ☺
Thankfully his Dad has injured himself in the past, πŸ˜… that sounded terrible, but he was able to give him a heads up on what he should expect πŸ˜‡
The staff at All Children’s was fantastic! The nurse, whose name I can not remember πŸ˜•, became quick buds with Ric as they talked about console vs. PC gaming, hackers, and their favorite games.

The look of unknowing fear on his face hurts my heart

He was not a very happy camper once he realized he was getting a cast..
But on the plus side I actually got him to sit comfortably on my lap, he was comfortable, not me, he weighs 80 something pounds!πŸ˜…
Strange request for dinner, but it it made him happy so πŸ‘πŸ‘
We pray he heals quickly. We will find out the actual extent of the injury tomorrow afternoon.

8 months after chiari decompression surgery

So here I am 8 months after surgery and 2 + weeks after having stopped taking Lyrica, it’s hard to explain how I somehow feel better and worse all at the same time 🀷 I highly doubt I will ever take Lyrica again. I know it may work for some but I found it was not working for me. Sadly most of the symptoms I had a year ago have returned; added to them is the feeling of an ogre squeezing the bottom left side of my head all day long..

I just try to remind myself that my CSF flow being severely blocked was reason enough for the surgery and I guess if I really had to weigh it out honestly I do feel better than I felt in August of 2017.

Hmm πŸ€” maybe had I been able to lock myself up in a safe little box away from the world while I was recovering things wouldn’t have felt so rough 🀷 but life keeps happening no matter what else is happening.

I’m learning to adapt, as I always have, that’s what a chronic pain Warrior does. I’m determined I’m still going to live my life!πŸ’ͺ Chiari has had me for too long, it’s time that I have Chiari.

Keep smiling through the pain!πŸ’œ

Taking the Time to Listen

God put it on my heart to write this today. I hope it reaches it’s intended audience!

Taking the time to listen. Listen to the silence. Listen to the whisper in your soul.

The world continues to grow busier and busier, so how do we learn to listen?

I’ve experienced first hand what not listening can do to a person. The chaos it causes in our hearts and souls and in turn our lives. I’ve experienced what listening can do for a person as well. Thankfully I’ve spent the last five years of my life making listening a goal. The dramatic change it makes is well worth the work it takes.

By now you may be wondering what exactly I mean by listening. What I mean is learning to listen to your soul. That whisper inside us all. There are many names for it, I personally choose to believe the whisper inside me is God. It is him speaking to me. And learning to hear him, to listen to myself, my gut, my true self, has caused me to grow more than I ever thought I could! If we would all just stop and take the time to be still and quiet, and stop listening to what everyone and everything around us is telling us about ourselves! And start listening to what our God is telling us about ourselves! You see all the power we need is inside of us and we allow noise and fear and obstacles, we allow life to get in the way of listening.

Trust me it’s not easy learning to listen and it doesn’t happen everyday but my God the days it does!! The days it does makes all the effort worthwhile.

The day we stop asking “why is this happening to me?” and start asking “what is this trying to teach me?” That’s the day we become free.

Chiari can be Lonely

Why aren’t you better their eyes seem to say when they ask how I’m doing and I reply (honestly) not ok

Why does any extra guilt need to loom over me? I’ve asked for none of this so why should I feel anymore guilty

Why should I feel guilty when I feel left out? Why should I be expected always to smile when all I want to do is shout?