Try as you may, try as you might, you will find in life that there are some people you just can’t make happy. No matter what you do, or don’t do, say or don’t say, you can’t make them happy. And, the reason you cannot make them happy is because it is not your job. They choose not to be happy. All too often these very people are your own family. Whether they be in-laws, or blood, you will find some people are just best to stay away from. They are poisonous. They are so unhappy with their own lives that they choose to drag down anyone around them.
Please spread awareness! Chiari Malformation, also known as Arnold Chiari Malformation, is a rare brain disorder where the skull does not form big enough to hold the cerebellum. It is related to spina bifida, that is how serious Chiari is. It reduces the flow of fluid throughout the brain and body. It can be extremely debilitating, worsening as time goes on. Sadly, there is no cure for Chiari there are surgeries to help ease the pain and pressure that the brain puts on the spine, but there is no cure! So please help raise awareness! September is Chiari Awareness Month. September is the month for all invisible chronic illnesses! Wear purple! Google it! Research it! Talk about it! If you are a doctor or nurse, or in the healthcare industry at all, please learn about it! There are so many people who are misdiagnosed!
Surgery was Wednesday August 23rd, and as you can tell I made it. My Neurosurgeon said it was a mess in the back of my neck and head, just as he thought it would be.
I was released from the hospital two days after surgery. I never vomited once!👍 That was surprising for all of us including Dr. Koebbe, he had warned me that vomiting would more than likely be the worst side effect after surgery.
My movements are limited for a while. No bending, twisting, or squatting. I’ve got a lot of adjustments to get used to.
I’m so thankful to be home!! 😊💜
So here we are, one day away from surgery. I’m running around the house putting Post-it notes on drawers and cabinets, because, we just moved about a week and a half ago.. My son and husband have no idea where most of our stuff is.
I must admit life has been extremely hectic, but, I’m remaining as positive as possible, because, I know my emotions affect my family…
I am terrified!! Yet I walk around with a smile on my face.
Tomorrow, the back of my head will be shaved and cut open. So today is the last day before my whole world drastically changes.
Chiari is a monster. It torments you. Some days it makes you believe that you’re okay and you begin to try to live a normal life like you did before it got so bad and out of the dark it’s swoops in and knocks you down.
I am going through a whirl wind of emotions. With surgery about 4 days away my mind is all over the place. Humour has always been my place of refuge; sort of like Chandler on the epic series Friends, comedy, humour, they are my armour.
Walking through my local dollar store I found this little gem 😁 oh the smile this brought me is priceless! I’ve warned my family to watch out, now I’ve got a service bell.
The Golden Rule. Treat people like you want them to treat you. The Golden Rule. With a bit of effort it’s not that hard to do. The Golden Rule. When you make a mistake, how would you like someone to treat you? When you are feeling ill, what would you want your loved one to do? The Golden Rule.
Follow the Golden Rule.
Don’t treat others in a way you wouldn’t want them treating you.
When I started this blog my aim was to try to stay focused, but, my mind pulls in so many different directions! I think I’ve decided that that’s exactly what this blog will be. It will simply, be. I will allow my mind to pull me in whatever direction it wants to go in, and write about whatever passionately takes hold in my mind, in that moment!
I’ve been contemplating life for the past couple of years. I feel like I’ve grown a great awareness and a very deep connection with my God. He talks to me and he guides me and my intuition has never been stronger!
I’ve learned that I have to get out of my own way if I ever want to accomplish anything! I have never felt more free, more content, more fulfilled in my life, and I’m weeks away from brain surgery.. it is crazy the way things seem to just fall into place, the obviousness of divine intervention, the peace that I feel most days, even whilst in the most excruciating pain I have ever experienced, has cemented that old adage that everything in life happens for a reason. Every heart ache, mistake, missed oppurtunity, all bring me to right here, right now, who I am in this moment.
“This is me. And I am in love with her!”
I have learned to say no to people, people that I love and care about, and for a people pleaser which I have been my whole life, that is extremely hard to do! I stand up for myself now, the way I always stood up for others. I have learned to love people where they’re at, but, I now know that, that does not mean I have to allow them to treat me badly.
I choose to get up each day and believe that there will be good in that day, no matter how I feel and no matter what is happening.
I have allowed God to work in me and make me the person He created me to be!
Getting out of my own way has been the best thing I could have ever done for myself! And it has prepared me for what is coming soon. Every trial, every ache every pain, every hardship, has made me who I am and has gotten me ready for what is to come.
I know there are quite a lot of pictures in this post but you see, I’m very visual. I love the brightness in the color of life and if I can bring a smile to at least one of your faces, then my job is done for the day.
I want to share what Joy I have and give people hope, that no matter what you are going through, you don’t have to be miserable, you don’t have to be ashamed, you don’t have to feel guilty. There is always someone who cares, even if you don’t know them, even when you feel like there is no one. I care, even when I don’t know you, or don’t like you, or really don’t want to *laughs* it is exhausting, but, I always care. I was made that way, and each day I will embrace it more and more.
Be the most authentic version of yourself! Life is to short for anything less!
I knew it was only a matter of time. I’ve been pushing it to the back of my mind, but today it has caught up with me. I don’t feel very well you see.. my head it hurts, my face feels full, my stomach it churns.
I just want to be whole
I guess I had too many “good days” in a row…
The weather looms dark overhead. I wish I could have stayed in bed, butI can’t lay back on this blasted head! Alas, it is too full. The pressure is too great.. maybe I should meditate.
I feel ill today and it won’t go away, it weighs heavy on my soul
The pain looms as Thunder booms with dark skies overhead oh how I wish I could find comfort in my bed..in my body..in my head.